Monday, 21 January 2013

You Can Help

I'm of the view that we're quite understanding nowadays with regard to women's problems. It's drummed into us culturally, that we must be very sensitive around certain issues. Men on the other hand suffer in that they are both hesitant to raise intimate concerns with their doctor and are somewhat less likely to receive an empathetic ear. By no means is this a given across the board though, which is why I feel it's important to shine a light on medical professionals and practices that provide both a professional and compassionate service.

It's always extremely helpful to hear directly from peyronie's disease sufferers / patients. Any GP or urologist experience you can detail, both good or bad, can help us to build on a body of information that helps and can be shared with the whole peyronie's disease community. There are too many accounts of people having negative interactions when presenting this delicate condition to their GP or urologist. From an emotional and practical standpoint making the right decisions early on can make a real difference with regard to treatment and mental well being. Please do contact us if you feel that you have anything to share with us.

Monday, 7 January 2013


I haven't had an awful lot to say for myself lately, but never fear, an update is here. As the site has been worked on over time it has come to include the vast majority of currently available treatment options and those on the horizon. It's only natural that there isn't something to report every week or even every month. Where there are new developments though, I will certainly continue to highlight them. I wouldn't be surprised to see Xiaflex become more prominent in term of injectable treatments over the coming year or so, but it's success may come down to the skill of the doctor doing the injecting. Further down the line I would say that stem cell treatments offer the key to treatment peyronie's disease and many other conditions. There is always forward movement, even if it is slower than we'd hope.

Studies continue to emerge relating to peyronie's disease, and it's comforting to know that progress is being made, knowledge combined, and that the condition does have the attention of at least some in the medical profession. There have been a number of peyonie's surgery studies released of late for instance and one relating to the psychological impact of peyronie's disease which should be an eye opener to those who view this is a purely physical condition. It wasn't so long ago really - over the last 2,3 years - that meaningful pentoxifylline, Coq10, traction and VED studies emerged. Over time the tools available to combat peyronie's do become more numerous.

If you find yourself in a position where you're dealing with PD in 2013, I'd say that it's important to try to be as pro active as positive, and to thoroughly research the condition yourself. Do not shy away from the condition or listen to anyone, medical professional or otherwise, giving you "wait and see" advice that leads to nothing but wasting valuable treatment time. Getting started on conservative treatments like pentoxifylline, VED, traction and so on should be high on your agenda.  Surgery is clearly an option too, though only once the conditon is stable. Wherever you're at with peyronie's, hang on in there.